‘I live in Warooko on Groote Eylandt, and this is my story to talk about the MJD. From my two sisters and down to my younger brother they have got this MJD and I was the luckiest one that didn’t have the MJD. But with my brothers I never sat next to them and never talk to them about this disease. I only say to them I wish I could help you, feed you, but our culture says I’m not allowed to sit next to my brother or even feed him, it’s our culture. I used to go and grab something for them, from someone else I would ask to help them. We do our best to help each other and we treated them as a normal person. We never treated them as disabled.’